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Boy with butterfly on the face. Face painting Stock Photo - Alamy
Boy with butterfly on the face. Face painting Stock Photo - Alamy

Missouri boy with 'butterfly disease' has fragile skin that tears | Daily  Mail Online
Missouri boy with 'butterfly disease' has fragile skin that tears | Daily Mail Online

RACGP - Epidermolysis Bullosa, the worst disease you have never heard of
RACGP - Epidermolysis Bullosa, the worst disease you have never heard of

The Boy with the Butterfly Skin | The Doctors TV Show
The Boy with the Butterfly Skin | The Doctors TV Show

Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes  90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life
Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life

Butterfly child' gets help from specialist with experience in treating her  rare skin condition | MUSC Health | Charleston SC
Butterfly child' gets help from specialist with experience in treating her rare skin condition | MUSC Health | Charleston SC

Ottawa boy Jonathan Pitre dead at 17 from rare skin disease | CBC News
Ottawa boy Jonathan Pitre dead at 17 from rare skin disease | CBC News

Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes  90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life
Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life

Butterfly Child' With Rare Skin Disease Dead at 17 | PEOPLE.com
Butterfly Child' With Rare Skin Disease Dead at 17 | PEOPLE.com

Debra Ireland - The Butterfly Skin Charity - It is with a heavy heart that  we have to tell you the very sad news that EB hero and campaigner Jonathan  Pitre sadly
Debra Ireland - The Butterfly Skin Charity - It is with a heavy heart that we have to tell you the very sad news that EB hero and campaigner Jonathan Pitre sadly

Canada boy with skin as fragile as butterfly wings dies aged 17 | Daily  Mail Online
Canada boy with skin as fragile as butterfly wings dies aged 17 | Daily Mail Online

Boy with devastating 'butterfly disease' saved as scientists create new skin  | Metro News
Boy with devastating 'butterfly disease' saved as scientists create new skin | Metro News

Butterfly Children' Disease Causes This Boy's Skin to Look Burned and  Blistered | Health.com
Butterfly Children' Disease Causes This Boy's Skin to Look Burned and Blistered | Health.com

Butterfly Boy' Has Rare Disorder Causing Skin to Fall Off
Butterfly Boy' Has Rare Disorder Causing Skin to Fall Off

19-year-old Chinese boy Mei Xiao, dubbed the 'butterfly boy', who suffers  from a genetic skin illness, is pictured at home in Chizhou city, east  China Stock Photo - Alamy
19-year-old Chinese boy Mei Xiao, dubbed the 'butterfly boy', who suffers from a genetic skin illness, is pictured at home in Chizhou city, east China Stock Photo - Alamy

Butterfly boy' teenager who is 95% covered in blisters has delicate skin  which falls off at slightest touch - World News - Mirror Online
Butterfly boy' teenager who is 95% covered in blisters has delicate skin which falls off at slightest touch - World News - Mirror Online

Meet the butterfly boy: Six-year-old's skin falls off and blisters at the  slightest touch - Daily Star
Meet the butterfly boy: Six-year-old's skin falls off and blisters at the slightest touch - Daily Star

Boy, 5, with 'butterfly skin' left with third-degree burns from simple  bumps | The Scotsman
Boy, 5, with 'butterfly skin' left with third-degree burns from simple bumps | The Scotsman

Boy who could die from a paper cut is turning 16 against all odds
Boy who could die from a paper cut is turning 16 against all odds

Gene therapy gave this 'butterfly boy' a new skin and life
Gene therapy gave this 'butterfly boy' a new skin and life

Ottawa's 'butterfly boy,' Jonathan Pitre, dies at age 17 | Globalnews.ca
Ottawa's 'butterfly boy,' Jonathan Pitre, dies at age 17 | Globalnews.ca

Ottawa boy Jonathan Pitre dead at 17 from rare skin disease | CBC News
Ottawa boy Jonathan Pitre dead at 17 from rare skin disease | CBC News

My boy's skin tears at the slightest touch – he's a 'butterfly child'
My boy's skin tears at the slightest touch – he's a 'butterfly child'

Butterfly child' given life-saving skin - BBC News
Butterfly child' given life-saving skin - BBC News